Methods: Using a community-engaged research approach, we collaborated with two predominately African American serving organizations to support the content development and the delivery of Aging With Grace (AWG) a culturally tailored dementia educational curriculum. Purpose: The purpose of the study was to explore how a culturally tailored community-based recruitment method impacts 1) enrollment in ADRD research studies among older African Americans in the Midwest and 2) ADRD knowledge and perception of clinical trials. Despite the higher prevalence of ADRD among older African Americans, less than 5% of African Americans participate in clinical research trials. Future studies should assess long-term retention of knowledge and research readiness.Īfrican Americans are disproportionally affected by Alzheimers disease and related dementia (ADRD) and are two times more likely to develop ADRD compared to their White counterparts. Education programs developed in partnership with the community can serve as bridge to research participation for underrepresented minorities in clinical research. Our work demonstrates the effectiveness of a culturally tailored community education program to enhance knowledge, clinical trial interest, and recruitment into observational studies and lifestyle ADRD clinical trials among older African Americans. Attendees (32%) also perceived an increase in ADRD knowledge from attending AWG and 89.1% believed more African Americans should participate in research. Enrollment increased within an observational study (84%) and lifestyle prevention clinical trials (52%) from 2018 to 2019. Most attendees (67%) expressed interest in participating in clinical trials after attending AWG. A total of five AWG presentations were given to 66 attendees. Using a community-engaged research approach, we collaborated with predominately African American serving community-based organizations to support content development and delivery of Aging with Grace (AWG), a culturally tailored ADRD educational curriculum. The purpose of the study is to 1) explore how a culturally tailored community education program impacts clinical trial interest and enrollment in ADRD research studies and to 2) identify how applicable the African American community perceived the culturally tailored curriculum. Despite the higher prevalence of ADRD among older African Americans, recent estimates suggest research enrollment by those who identify as African American remains limited. Institutions of incarceration must address these concerns to increase vaccine uptake as the pandemic continues.Īlzheimer's disease and related dementias (ADRD) is two times more prevalent among compared to non-Hispanic Whites. For residents in the BOP, COVID-19 vaccination was not simply a binary decision, instead they weighed the costs and benefits with most deciding against getting vaccinated. By contrast, twelve got vaccinated post-release because of greater trust in community health care and stated they would not have done so while incarcerated. Most were reluctant to get vaccinated in custody for varying reasons including observing staff declining to be vaccinated, lack of counseling to address specific questions about safety, and general lack of trust in the carceral system. Interviewees had mixed attitudes about how vaccines were distributed, particularly with priority given to staff. The vaccine was available to seven participants in custody, of whom three were vaccinated. We assessed perceptions of the vaccine rollout and factors shaping vaccination uptake in custody and after release. Between September-October 2021, we conducted semi-structured interviews with 21 recently released individuals who were incarcerated before and during COVID-19 and coded transcripts thematically. We aimed to examine the perspectives of former residents in the Federal Bureau of Prisons (BOP) regarding COVID-19 vaccine hesitancy and acceptance. Vaccination is one strategy to disrupt COVID-19 transmission, but there are many factors impeding vaccination while in custody. This is due to challenges containing outbreaks in facilities and the high rates of health conditions that increase the risk of adverse outcomes. People in United States (US) prisons and jails have been disproportionately impacted by the COVID-19 pandemic.
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